Not-for-Profit Pediatric Stroke Organizations

YGSA is based in Boston, Massachusetts. Some of the organizations listed here are local to the Boston area, however, many are international and national organizations. You can also find rehabilitation organizations local to your community by contacting your nearest hospital as a resource.

  • The Children’s Hemiplegia and Stroke Association helps children who have survived an early brain injury that results in hemiplegia or hemiparesis (weakness on one side of the body).
  • The International Pediatric Stroke Organization (IPSO) seeks to advance knowledge on mechanisms of childhood stroke and stroke recovery with an eye towards preventing stroke and improving outcomes
  • The International Alliance for Pediatric Stroke (IAPS) was created to unite pediatric stroke communities around the world. IAPS provides knowledge, hope, resources and connections between families, medical specialists, researchers, healthcare providers and anyone affected by pediatric stroke.
  • Brendon’s Smile provides opportunities to advocate and raise awareness among the general public locally and online.
  • The Children’s Stroke Foundation has a simple mission: to educate doctors throughout the United States about pediatric stroke.
  • The Bellaflies Foundation is dedicated to spreading pediatric stroke awareness, supporting children’s hospitals, and working to advance pediatric stroke research in medicine and testing worldwide.
  • The I am Jayden Foundation spreads awareness about pediatric stroke and provides funding for organizations/foundations/survivors associated with pediatric stroke.
  • The Sickle Cell Disease Association of America promotes finding a universal cure for sickle cell disease while improving the quality of life for individuals and families where sickle cell-related conditions exist.
  • Lotsa Helping Hands powers online caring communities that help restore health and balance to caregivers’ lives.
  • The Access Sports America inspires higher function and fitness for children and adults of all disabilities through high-challenge sports and training.
  • The American Stroke Association is dedicated to prevention, diagnosis and treatment to save lives from stroke — America’s No. 5 killer and a leading cause of serious disability.
  • The Brain Injury Association of America is the country’s oldest and largest nationwide brain injury advocacy organization.

Support Groups

  • Family Ties of Massachusetts provides information and referral services, emotional support and training to parents of children and youth with special needs.
  • HemiChat is a parent-led UK charity built on support relating to babies, children and young adults living with Hemiplegia.

Government Programs

Medicaid Waiver Program Federal information on the Medicaid waiver program. This program is NOT based on parent income. It is based on the child’s income and many children with hemiplegic cerebral palsy will qualify.

Fact Sheets